Our Wisdom Shared                                                     T1D Teen Rescue

Diabetes Stories & Feedback

W
e are not saying these ideas will work for everyone what we are offering is advice on what did work for us.

 Question of the Week  &
Stories of Success
 
     


    Our Wisdom shared will be featuring stories & feedback.  The stories are here to show you some great ideas that worked for other parents.  Some ideas work for one family may not work for yours.  If that happens please share what is working for you.  The more ideas the more we can share and give support to each other.

The feedback will be how we are doing working with the parents that seek our ideas.

This page will be constantly changing with the information coming in.  I will also be adding a question of the week. If everyone could  brainstorm their ideas I'll have everyone email the ideas and I'll add them under the ? of the week

            Please let us know if there is a story or idea you would like to share on the  Stories & Feedback link.
 

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Question of the week:

Send ideas to diabetesparents@ourwisdomshared.org

New Question of the week

School is starting...What is overwhelming you?
Homework?
Sports?
School Plan?
Peers?
Ask your Questions and We'll answer...

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How do you help your at home child know how to keep track of carbs taken in?

I love this question. It sparked me to start making a list of foods that teens eat that are hard to calculate. This will be coming soon. Email me if you have a specific food you would like on the list.  When posted feel free to print it out.
1. Plan ahead.
2. Make a list of carbs as you buy things
3. Write on the box how much is a serving for your childs carb count.
4. Buy the 100carb. snack foods.
5. Make lunches as if they were going to school.
6. Have plenty of snacks so that their friends can have a snack when your child needs one.

Keep The Questions and suggestions Coming.


What are you going through with your type 1 diabetic child that you think you are the only one?

1. My teenager lying about her numbers.
~A1C doesn't lie I let the Dr. know my concerns and let them talk to her and how she's hurting herself
2. Newly diagnosed child losing their hair.
~Sometimes after being diagnosed since the body has been fighting itself so long that the stress makes their hair start to fall out.  It will however stop and begin to thicken back up.
3. Child sneaking sweets.
~This is a sign that they feel like they aren't able to have what they want.  Talk to them and plan sweets everyother day or plan for special sweets for lows.
4. Teen not wanting to deal with their Diabetes anymore.
~ Teens are busy and excited about their lives and they've had to grow up too fast. Maybe you need to take over their morning and night shots, or getting their vials of insulin ready for them. They seem to be growing up, but that's when they need you the most.
5. Pump sites not working as well anymore.
~The parents and children get used to what they know. But their are different sites that might be even better for them. Inner thighs, Stomache(its scary but the least painful and it absorbs the best), upper arms, and hips. Sometimes areas get hard spots that need to heal.
6. Lows at night.
~Parents take turns checking the children. If its a new activity it their body will get used to it. If it is happening all the time email your Dr.with numbers they'll prob want to adjust their insulin befor bed or pumps basil rate at night.
7. Parents feeling overwhelmed and sick of dealing with their diabetes.
~Unfortunatly diabetes doesn't take a vacation however if you are feeling overwhelmed you need to figure out what is overwhelming you. Is there something you can do differently? I will help with any questions or just talking things through all you have to do is contact me.
8. Defiance
~This is a tricky one. Are they being defiant because its normal for the age, to get attention, or really frustrated? Sometimes they use their diabetes as a way to get things or out of things. Always be on top of that and let them know its not an excuse for bad behavior its just their body in need of some meds.
9. Depression
~This ones scary. 100% of children with Type 1 Diabetes gets depression.  You might want them to talk to a professional to learn how to deal with their emotions.

What do you do to prepare for a vacation?

1.I make a checklist (which I can provide)that has a list of supplies that you need. I then laminate it and use it to check off what we have packed. Use dry erase markers or washable markers for easy wipe off to reuse for coming home and the next trip.
2. Dr. note for the airports. Your Dr. will provide you with a note that lists all supplies you are carrying on.
3.Bring your Dr. business cards and the 800 emergency number for your Dr.s.
4.Do a search of the area where you will be staying to know where the pharmacies and Hospitals are.
5.Special low snacks put aside so no one accidentally eats or drinks them.
6. After a flight check insulin tubing for air bubbles.
7. Take your BG mete, plenty of strips, a large supply of glucose tabs (or candy) and just have fun. Check BF every couple of hours.
8. take 3x amount of supplies you think you'll need.


How do you get ready for summer with your Type 1 child?

1.Have clear and specific rules.
2.Always use the buddy system.
3.Call when arriving somewhere and when you are leaving to come home.
4.Test your blood before going skating or biking.
5.The first week of summer do night BG checks.
6.Keep Snacks in the house.
7.Make a special shelf for your Type1 child that is their low shelf. The treats are specifically for their needs.
8.Make sure your child has a water proof Medical alert band.
9.Sleepovers are ok just have a plan that you the parent is comfortable with. Possibly have them at your house.
10.Get some books that have Type 1 success stories like Nick Jonus, Halle Berry, Gary Hall, etc...
11.Make a summer journal of things you want to do and then write about them. Call it "Diabetes Won't Stop Me!"

How do you handle sending your child back to school after being diagnosed?

1. I went to the school with her.  I had talked to the teacher and she said it would be okay if I talked to the class. I told the class what she had and that it wasn't something they could catch. I then talked about how she would act if she got a low and how they could help. I then took questions.  They had a ton of great questions.  I would advise anyone to do this. Contact me for more details about what I said and how I handled the questions.
 
What do you do to prepare your child to attend a fair?

1. The one thing that always worked for us is to bring Raspberry Ice Crystal Light in a bottle to the fair.  We would order a snow cone without the syrup and add the Raspberry Ice to the shaved ice and they had their own safe snow cone.

2. We bring two way radio's so we can keep in touch as often as we are comfortable with.

3. We choose popcorn as a treat instead of the other treats. Three cups of popcorn is 15 carbs.

4. We have them wear candy necklaces around their wrist so if they feel low and we aren't around they can start eating the candy necklace for quick sugar.

5. We play games instead of eating the food there.  Its still a treat and they get to take something home to remember the day.


Babysitting Woes:
       Our problem was when our daughter got diagnosed was that we never wanted to leave her.  She was two and we were scared and didn't think anyone could learn what was needed to learn to take care of her.  We stopped going out without her.  We used to go to dinner and a movie, our date nights.  We would get a babysitter and go out and have fun together.  Now it was impossible to even think of leaving our daughter with our teenage babysitters.  I went to my daughter’s clinic in tears and told the doctors it had been almost a year and we never have time to ourselves. The doctor told us of a girl in our town who had Type 1 Diabetes and offered to call and give her our number.  I was worried about it.  What would she be like?  Would I be able to trust her with our daughter when she too had Diabetes?  Her mother called and explained she was on an insulin pump and she takes really great care of herself and she still watches other children and never has a problem with her diabetes interfering with it.  Her mom suggested that her daughter visit us while we were all together.  We invited her over one afternoon and watched her play with my daughter then when it was lunch time she got out her blood checker and checked her blood as my daughter was getting hers checked.  My daughter just watched her.  The girl then asked what her carbohydrate to insulin ratio was and how often we gave shots.  

 
We talked and I soon realized this teenager with Type 1 Diabetes knew more about my daughter’s diabetes then I did.  She could be there as a mentor for my daughter.  That was three years ago and we are lucky enough to still have her as our daughters sitter.  She knows how to count carbohydrates, check blood and give our daughter her shots.  If you are looking for a sitter I suggest asking your doctor if there are teens at their clinic that babysits.  


Our Wisdom Shared
P.O.Box 186
Mount Horeb, WI 53572
(608)770-8052

diabetesparents@ourwisdomshared.org